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Cleft Palate and Craniofacial Committee ( Guidelines )

LINKS (RESOURCES): INTRODUCTION

To help professionals, families and individuals looking for information and support about cleft lip and palate and craniofacial conditions we have collated resources and links to the relevant professional organizations and parent associations from around the world.

The views expressed in the resources are not necessarily the views of IALP.

Professional organizations

Resources compiled by national speech-language pathology associations for speech-language pathologists about cleft lip and palate and cleft palate speech.

Other organizations

Interdisciplinary professional organizations that bring together interested specialists from minority and majority world countries to advance care for individuals with cleft and craniofacial conditions. Webinars and resources available aimed at a professional audience.

Teaching and learning materials

Resources for SLPs interested in learning more about cleft palate speech, and resources for SLPs to share with their clients and families.

Information for client and family: Other resources

Professional organizations

Professional organizations are interdisciplinary organizations run by and for specialist professionals working with individuals with cleft lip and palate. They have information about cleft lip and palate, and a number of resources to support families.

Parent associations

Parent associations are run by individuals with cleft lip and palate and their families and aim to support and resources to other families and individuals with cleft lip and palate and craniofacial differences.

22q11.2 Deletion Syndrome organizations

Organizations aimed at supporting individuals with 22q11.2DS and their families.

INFORMATION FOR THE CLIENT AND FAMILY

 

Professional Organizations

  • American Cleft Palate-Craniofacial Association – US

Family resources:

https://cleftline.org/family-resources/ (English version)

https://cleftline.org/recursos-para-la-familia/ (Spanish version)

-Overview of cleft & craniofacial conditions    https://cleftline.org/family-resources/introduction-to-cleft-craniofacial-conditions/

-Educational booklets & fact sheets    https://cleftline.org/family-resources/booklets-fact-sheets/

-Feeding your baby with a cleft    https://cleftline.org/family-resources/feeding-your-baby/

-A glossary of frequently used terms    https://cleftline.org/family-resources/glossary-of-terms/

Parent Associations

-Information on support services    https://www.clapa.com/support/clapas-services/

-information about cleft lip and palate treatment    https://www.clapa.com/treatment/

https://www.cleftlip.org.hk/en/ (English version)

https://www.cleftlip.org.hk/ (Chinese version)

Other Organisations

-New South Wales    https://cleftpalsnsw.org.au/

-Queensland    https://www.cleftpalsqld.org.au/

-Western Australia    https://www.cleftpalswa.org.au/

22q11.2 Deletion Syndrome Organisations

OTHER RESOURCES

Professional Organizations

  • American Cleft Palate-Craniofacial Association (ASHA) – US

-Practice Portal: provides information to facilitate SLPs’ clinical decision making for children birth to school age with CLP; some information related to children with VPI    https://www.asha.org/Practice-Portal/Clinical-Topics/Cleft-Lip-and-Palate/

-Evidence Map: recommendations for SLPs for assessment and treatment of children with CLP or other craniofacial difference https://www.asha.org/EvidenceMapLanding.aspx?id=8589936384&recentarticles=false&year=undefined&tab=all

-Publication for Special Interest Group 5, Craniofacial and Velopharyngeal Disorders, of ASHA    https://perspectives.pubs.asha.org/sig5

- Cleft lip and palate​ Overview    https://www.rcslt.org/speech-and-language-therapy/clinical-information/cleft-lip#section-1

- Supporting people with cleft lip and palate and related disorders handout  https://www.rcslt.org/-/media/docs/RCSLT_Cleft_Palate_A4_FINAL.pdf

Other Organisations

Teaching and Learning Materials